alexavecchione
For many living with MASH disease, the road to a diagnosis can be long, frustrating, and full of questions. How did you feel after getting diagnosed with MASH? Did you know what MASH was prior to being diagnosed? We'd love to hear more about your experience!
CommunityMember4324e5Member
I've had a fullness in my right side - front and back - for a couple years. I mentioned it to my primary care doctor and she wasn't worried. Last year I had a low dose lung scan and it was noted that I had cirrhosis! Still my doc said "that can't be" and said we could wait to see what my next lung scan in a year showed. When I returned for my physical this year I again told my primary that the feeling of fullness had gotten worse. It felt like I had a large rock in there. She sent me for a CT and I knew something wasn't right when the CT tech asked another tech to look at the screen. "Is that fluid build up?"
Finally my primary told me to mention it to my gastro doc. This doctor sent me for a fibroscan where they diagnosed F3 liver damage. I was prescribed Rezdiffra and I've been taking it for about 6 months now. My gastro sees me every 3 months to see how I'm doing. I still feel the fullness in my side but I'm trusting this new drug will help.
For the record - my bloodwork has never indicated liver damage.
Gotta advocate for ourselves. No one knows your body better than you.
Julie.ByersCommunity Admin
RgueyMember
I saw an ad on Facebook about a study involving a liver scan. I signed up thinking it couldn’t hurt. When I got there there were other people in the waiting room. They went in and out pretty quickly so I thought this doesn’t seem like a big deal. When my turn came, I had the fibroscan. They had me wait for a bit and then a nurse practitioner came in and asked me how long I been an alcoholic. I told her I hardly drink. She asked a few more questions and had me wait. The doctor running the study came in went over my results. They ended up taking a lot of labs and forwarded the results to my primary. Now I am on a GLP 1 to help me lose weight. So far I have lost 15 lbs and my labs are better.
KabramsMember
I got diagnosed this year in 2026. I don’t know how long I had fatty liver. In 2025 only my ALT was elevated on my routine bloodwork and my doctor ordered an ultrasound of my liver. The results weren’t good. I was sent to GI. She ordered a lot of labs that all came back negative, then I had an MRCP (mRI) and that came back fine as well. I year later to make sure everything was fine my GI doctor ordered an abdominal ultrasound with elastography. That is how I got diagnosed, my koa values put me at moderate to severe liver scarring and I got put on Rezdiffra. Now I have lost 35 pounds and completely changed the way I eat. I try to stay away from processed foods, preservatives, artificial sweeteners and no alcohol.
KabramsMember
Jah1279Member
Scared
Julie.ByersCommunity Admin
